We are often asked to explain Bertie’s condition. This is tough because it is complicated. However, as it is Rare Disease Day, here goes: One of Bertie’s genes is faulty, specifically a collagen VI gene. In his case he didn’t inherit a faulty gene, although you can. It just went askew and created an error […]
We’ve been blown away this week by the newest members of Team Bertie: Nick McCoy, David Taylor and Luke Moorcroft who will be taking on the West Lancashire Summer Triathlon this August in aid of Bertie’s Buccaneers. They’ll be running, cycling and swimming around the glorious Edge Hill University campus to raise funds to find a cure for children like […]
Update: the winner will be announced shortly. Just waiting to hear back from our judges. xx Update!!! This competition has now closed. The entries have been sent to the Seas of Mirth and we will announce the winner very soon 🙂 Bertie’s Buccaneers are fighting to fund a cure for Ullrich muscular dystrophy. Our wonderful […]
Bertie was the poster boy for Parallel London last week and this made the news in both the Southport Visiter and the Liverpool Echo, really boosting his fundraising: